Schizophrenia caregivers: a reaction to caregiving
More caregivers responded you to taking good care of the in-patient is crucial that you them (59.2 %) and they planned to look after the diligent (fifty.3 %). A hefty ratio out of caregivers responded that they was basically compliment sufficient to look after individual (47.8 %), feeling blessed to look after individual (44.0 %), with enough bodily strength to look after individual (43.3 %), preferred taking good care of the average person (42.seven %), and that handling the in-patient means they are be more confident (39.5 %) (look for Fig. 1).
not, a hefty ratio out-of caregivers indicated that the fresh caregiving sense is actually burdensome. Particularly, caregivers indicated that caregiving got disrupted their dates (thirty six.step 3 %), you to their bodies has been around since worse since doing caregiving (thirty-six.step 3 %), effect exhausted for hours on end as starting care for the diligent (35.0 %), perhaps not seeing relatives and buddies to ahead of (thirty two.5 %), having difficulty relaxing due Dating by age dating apps to ongoing disruptions (29.2 %), and having to prevent in the middle of really works (20.4 %).
A substantial proportion off caregivers conveyed ineffective support taking good care of the patient. Particularly, caregivers responded they’d financial problems with new patient’s requires and you may services (34.cuatro %), the care had set a monetary stress on their loved ones (thirty five.0 %), that it is difficult to find help from their family (thirty-five.seven %), you to definitely their family kept them by yourself to address the diligent (twenty-eight.0 %), their family “dumped” looking after the in-patient in it (twenty-eight.0 %), and therefore their loved ones abandoned them just like the undertaking proper care (21.0 %).
In general, informal schizophrenia caregivers exhibited poorer health-related outcomes than non-caregiver controls. After matching schizophrenia caregivers with non-caregivers with similar demographic and health characteristics, a substantially greater proportion of caregivers reported experiencing the following symptoms and conditions: sleep difficulties, insomnia, pain, headaches, heartburn, anxiety, and depression, all p <0.05. Schizophrenia caregivers also reported lower HRQoL and health utility compared with non-caregiver controls, all p <0.05. Indeed, the mean differences between schizophrenia caregivers and non-caregiver controls were larger than the MID for mental HRQoL and health utility.
Caregivers of schizophrenia patients and caregivers of patients with conditions other than schizophrenia reported similar poor health-related outcomes, although some differences emerged. After matching schizophrenia caregivers with caregivers of patients with conditions other than schizophrenia but with similar demographic and health characteristics, a substantially greater proportion of schizophrenia caregivers reported the following symptoms: sleep difficulties, insomnia, and anxiety, all p <0.05. Moreover, a substantially greater proportion of schizophrenia caregivers reported currently taking prescription medication for depression and a greater level of depression severity. Schizophrenia caregivers exhibited significantly lower mean mental HRQoL and health utility scores compared with caregivers of patients with other conditions, though these differences did not exceed our pre-defined threshold of meaningfully important differences, all p <0.05.
A prior review of published research of schizophrenia caregiver burden found that, overall, this population experiences deteriorated health, with stress problems, anxiety and depression . The current study corroborated these findings, as informal schizophrenia caregivers reported higher levels of these health issues relative to non-caregivers and caregivers of conditions other than schizophrenia. Zendijidjian et al. (2012) found that caregivers of patients with affective disorders scored significantly lower on all SF-36 domains than caregivers of schizophrenia patients . The current study, however, found significant differences on the MCS, but not the PCS when comparing schizophrenia caregivers and caregivers of other conditions. These differences could be due to the broader criteria provided for caregivers of other conditions in the current study. Papastavrou (2012), comparing schizophrenia, Alzheimer’s and cancer caregivers, on the other hand, found that caregivers of cancer patients experienced the highest levels of depression, while Alzheimer’s caregivers experienced the highest levels of overall burden (p <0.001) . Unlike previous studies of schizophrenia caregivers, the current study employed a representative sample of schizophrenia caregivers, directly comparing HRQoL and comorbidities for schizophrenia caregivers with non-caregiver controls, and schizophrenia caregivers with other caregivers. Because of this, making direct comparisons with prior studies is limited. However, a prior study using 2010 and 2011 5EU NHWS reports higher MCS, PCS and health utility scores for cancer caregivers than the current studies schizophrenia caregivers , suggesting potentially poorer HRQoL for schizophrenia caregivers than caregivers of cancer patients. Therefore, overall, given previous literature and the current study results, the health status of schizophrenia caregivers were found to be comparable if not worse than caregivers of other conditions.